Rare doesn’t mean few. It means millions of lives and a race against time. What starts with one rare disease becomes a story shaped by music, community, and hope. A story of people refusing to wait, moving what once felt impossible closer to reality... a cure, starting with Epidermolysis Bullosa, the Butterfly Disease, where skin can be as fragile as a butterfly’s wings. Watch Matter of Time, now streaming on Netflix: https://eddievedder.lnk.to/MatterOfTimeNetflixFP EB Research Partnership | Edd
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