Patient groups typically form around specific disease areas with an aim of advocating for improved treatments and therapies for patients who fall into those categories—and they’re feeling the ...

The use of social media, specifically Facebook groups, in clinical practice can help healthcare providers incorporate an effective patient support community, according to a pilot study published in ...

Receiving a breast cancer diagnosis can be a life-altering experience, and it can also feel like you’re the only one going through this. But about 316,950 new cases of invasive breast cancer will be ...

Distress and isolation frequently affect individuals with cancer and oncology care providers. Both oncology care teams and patient communities play a crucial role in offering support during ...

SRF (SYNGAP1), RSRT (Rett), CACNA1A, STXBP1, Loulou (CDKL5), & KCNQ2 Cure (KCNQ2) collaborate to support Dr. Devinsky’s research for clinical trial readiness. Co-funded by multiple organizations, this ...

We welcome new members to our support group. Ask about online participation options if you can't attend in person. Let us know if you're interested. We can give you the timings and discuss costs and ...

Since OpenAI’s official launch of ChatGPT, we have seen a sharp increase in the healthcare industry’s adoption of AI tools across different use cases, from improving diagnostic precision and ...

Between 2021-2024, Joel Lexchin received payments for writing a brief on the role of promotion in generating prescriptions for a legal firm, for being on a panel about pharmacare and for co-writing an ...

Academics are calling for governments to act to “safeguard the independence” of patient groups that receive funding from biopharma companies. The call reflects a belief “drug companies shape and mold ...

Four years ago, Barbara LaCoste began seeing blurry spots in her central line of vision. During an eye exam at the John A. Moran Eye Center, the 78-year-old received a diagnosis that was all too ...